Hi all,
A belated update on our lives.
Today was Stephen's first radiation session and tonight marks the first time he will take his chemo pill. His radiation schedule will be 5 days a week for 6 weeks and he will be taking chemo pills every day for the full 6 weeks. At the end of this period, he will have a month off and then start on a higher chemo dose and take pills for 5 days and none for 23 days. He will repeat this cycle for up to a year. The doctors believe he will tolerate the treatments well and we will be vigilant in our observations of Stephen throughout this process. A commitment for certain.
But, as the oncologists have stated, this is a part of our lives, not our entire life. We are holding onto that perspective and trying to go about the other parts of our lives. I have been back at work for the past few weeks, Anemo's been at school, Stephen has taken him to swim and soccer classes, Halloween, and birthday parties, trying to get into life as it was (albeit a bit changed).
A most poignant symbol of how Stephen's treatment is part but not all, was having Anemo's parent/teacher conference soon after being at UCSF. What a wonderful reminder of the full life we have. How fortunate we are that Stephen can get the treatment he needs. How fortunate we are to have a son who lives joyfully in the moment, engaged fully in what is presented, and makes us laugh.
Much love, Suzanne
Thank you for the update, Suzanne. Love to you, Stephen and Anemo.
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