Thursday, September 29, 2011

Stephen coming home, September 29, 2011



Hi all,

We've had spotty Internet service at the hospital so a quick bullet pointed update about yesterday and today!
  • Stephen was moved from ICU to his own room on Wednesday afternoon. Though we were sorry to say good bye to the wonderful nurses in the neuro ICU, we knew this was a great sign.
  • The pain and swelling are much better this time around. It is likely due to the fact that they used a drain in his brain this time, that was removed yesterday as well.
  • Since we were in a private room, the nurse allowed us to smuggle in a 4 year old package who was thrilled to see his daddy.
  • Stephen is having an MRI this morning, Thursday, and will then be discharged! Incredible news! We expect him to be home by evening.
  • The main issues we are now dealing with are what they are calling a "droopy lip" and the news from pathology about the next steps in treatment. The minor paralysis on the left side of his lip is because they needed to get much closer to the part of the brain that controls motor function, the tumor was embedded more deeply there this time. Though the pathway that controls his lip was disrupted, the neurosurgeon assured us his brain was already working on creating a new pathway. Soon that smile of his will be symmetrical again!
  • We will know by the end of next week what kind of treatment Stephen will have. He did not have to have chemo or radiation last time but because this is a recurrence, the recommendation will likely be further treatment. We will keep you updated.
Thank you for all the powerful positive energy you have sent our way. Stephen has been so nourished by the kind words, offers of support, and prayers of every kind.

With much love, Suzanne

1 comment:

  1. Thinking of you! Looking forward to seeing and playing with all you soon. Elizabeth, Bryan , Norabelle and Lucy

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